Financing and Reimbursement of Cures in the US

Image of publication covers Image of child undergoing chemotherapy Image of three threads going through needle eye Papers, spreadsheets, and a calculator coming out of a toolbox
Research and publications
Get original FoCUS Project research and learn about financial challenges and potential solutions
FoCUS Project Prospectus
Get details about how the project works, what's in the future, and how to get involved
Paying for Cures
This microsite incudes information about conferences and workshops, and gathers FoCUS publications and media
Paying for Cures Toolkit
Explore our free new interactive resource to explore explore challenges and plan solutions to financing new cell and gene therapies

Medical research is making significant advances toward treatments that cure major diseases, but these treatments will often entail very high up-front costs. The FoCUS Project seeks to collaboratively address the need for new, innovative financing and reimbursement models for durable therapies in the US that ensure (1) patient access for needed treatments; (2) affordability for public and private payers; and (3) the sustainability of innovation by manufacturers. This multi-stakeholder effort unites developers, providers, regulators, patient advocacy groups, payers from all segments of the US healthcare system, and academics working in healthcare policy, financing, and reimbursement.

FoCUS research and design

  • Engaged cross-sector, multi-stakeholder group to identify challenges and cooperatively design sustainable solutions
  • Analyzed drug pipeline to understand scale of the challenge
  • Described system of “Cure Archetypes” and how different kinds of healthcare payers can support them
  • Designed and served as a catalyst for Precision Financing pilots to test real-world application